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Privacy Policy

Effective: February 28, 2021

This Privacy Policy (the "Policy") describes how we collect and use the information you provide on our website. Our primary mission is to increase awareness about, and facilitate participation, in clinical trials related to development of investigational drugs and therapies. Individuals entrust us with information of a personal and confidential nature, so we have adopted this Policy to inform you about our practices in collecting, using and protecting such information. The Policy explains in general terms how we seek to comply with data privacy laws and regulations.

Children Under 16


Our websites are not intended for children under 16 years of age. No one under age 16 may provide any personal information to us through our websites. We do not knowingly collect personal information from children under 16. If you are under 16, do not use or provide any information on our websites. If we learn we have collected or received personal information from a child under 16, please contact us at info@maggiespearl.co and we will delete that information.

Information Covered by this Policy
 

This Policy applies to any personally identifiable information about you (“Personal Information”) that you may provide to us when:

  • using any of our websites or sending us information by email;

  • speaking with one of our representatives on the phone; or

  • providing information in writing.

Information We Collect and How We Use It


At various locations on our site, and during our business practice, we ask you for information, which will allow us to provide you (whether you are a patient or physician) with information that is targeted specifically to you. If you would like to be considered for enrollment in a clinical trial, this information allows us to contact you regarding particular studies for which you may be eligible. We collect information in the following ways:

  • Initial User Registration. We collect information you provide to us when you register at one of our sites (e.g., email address).

  • Further Information. At various locations on our site, we may ask you for additional information so that we can provide you with additional services (e.g., notification about your appointments or new clinical trials).

  • Enrollment Forms. Many of our users are interested in enrolling in clinical trials. To learn whether you satisfy the criteria for a particular trial, we request medical information via a questionnaire. If you meet the prequalification criteria for the trial, and grant us explicit permission to do so, your information will be forwarded to an investigator for further evaluation; the investigator will be under strict constraints by laws governing the disclosure of Personal Information.

  • Data Aggregation. To enhance our ability to provide you with our services, we may combine your Personal Information with aggregated data about groups of people in similar circumstances.

  • Messaging Services. If you enroll in a clinical trial and expressly consent to receiving study information and messages, we will provide you with appointment reminders, study instructions, and other important study instructions. In addition, we may exchange relevant health information with the study doctor and staff in order to provide these services.

  • Opt Out Requests. If you send us a request or use our website to opt out of receiving information or being contacted, we will retain and use some of your information to avoid further contact with you. We may also retain your information to the extent it has previously been incorporated in anonymized data and as necessary for us to meet legal requirements and defend claims against us.

  • Resource Documents Registration. If you register to use our resource documents, we request your name, company email address, company name, and telephone number. We use this information to create an account for you to allow you access to our patient recruitment white papers, recorded webinars, brochures, case studies, and other resources.

We will retain your information for as long as your account is active or as needed to provide you services. You may remove your information from our contact list by submitting a request by email to info@maggiespearl.co. Please note that we may retain and use your information as necessary to comply with our legal obligations, when we believe that disclosure is necessary to protect our rights and/or comply with a judicial proceeding, court order or similar legal process served on our website, to resolve disputes, and to enforce our agreements.

Information Sharing and Transfer


We will share your Personal Information with third parties only in the ways that are described in this privacy statement or unless you expressly opt in to such sharing.

Service Providers/Partners


We may provide your information with third-party service providers (e.g., call centers, email service providers), or data partners who are contractually bound to handle your information confidentially and prohibited from disclosing your information to others.

Legal Notice


We may disclose your personal information as required by law, such as to comply with a subpoena or other legal process, when we believe in good faith that disclosure is necessary to protect our rights, protect your safety or the safety of others, investigate fraud, or respond to a government request.

When and How We May Contact You


When you register with us, or complete a prequalification questionnaire associated with a particular trial, you indicate your consent for us to store your Personal Information in our database and contact you about clinical trials for which you may be eligible by various means, including telephone, email, and postal mail. You also have the option of receiving emails regarding new postings to our site, including news or new clinical trials. In addition, we may contact you periodically when we have provided new functionality to our website, so that you may take advantage of the new services. If you receive a text message from us and would like to discontinue such messages, you may reply with the word “STOP.” Providing a telephone number constitutes your consent for us to contact you at that number for the purposes outlined in this Policy.

Correcting Your and Your Child’s Personal Information and “Opting Out”


Upon request, we will provide you with information about whether we hold, or process on behalf of a third party, any of your personal information. To request this information please contact us at info@maggiespearl.co.

 

You may correct your Personal Information or your child’s information, modify your contact preferences, or completely opt out of our services at any time. You can update your or your child’s information, correct inaccuracies, or delete some or all of your or your child’s data by contacting us at info@maggiespearl.co and we will respond to your request to access within 30 days.

 

We sometimes refer to your consent to be contacted, to be included in a clinical trial, or to other use of your Personal Information as “opting in.” You may revoke your consent (i.e., “opt out”) at any time.

 

Information Security
 

We maintain information security safeguards to protect your Personal Information. We protect any Personal Information you provide using encryption, and utilize firewalls to protect our computer network from hackers. We take reasonable steps designed to prevent unauthorized access, use and alteration of Personal Information, but cannot guarantee the security of such information.

Data Protection Laws


In jurisdictions with data protection laws, we will ensure that individuals can exercise all relevant informational rights regarding their Personal Information we process, including the rights of access and correction, to prevent direct marketing, block processing, and erase data.

Links to Third Party Sites


Our website includes links to other websites whose privacy practices may differ from those of ours. If you submit personal information to any of those websites, your information is governed by their privacy statements. We encourage you to carefully read the privacy statement of any website you visit.

Sale or Transfer of Corporate Assets


We expressly reserve the right to transfer our database of information to another legal entity as part of any sale or merger of us with that entity. Any entity acquiring our data assets will do so with the express, written commitment to use the data only for authorized purposes, and only if the entity maintains a similar level of privacy and information security protection. You will be notified via email or notice on our website of any change in ownership or uses of your Personal Information, as well as any choices you may have regarding your Personal Information.

 

Inquiries, Complaints, and Requests to Exercise Rights


All communications, queries, requests to exercise informational rights (e.g. access to data) or complaints should be addressed by email to info@maggiespearl.co.

Changes to the Policy


We regularly review our Policy to ensure that it provides an appropriate level of protection for your Personal Information. From time to time, we may make changes to our Policy to keep it current with industry standards and as required by law. We will post the date of the most recent revisions on this page. Please check back here from time to time to make sure that you are current and up-to-date on our Policy. Please keep in mind that your use of our website means that you accept our Policy. If we make a material change to this policy, we will notify you by means of a notice on our home page prior to the changes taking effect.

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